David is a miracle - he has faced so many difficulties and challenges in his short life. He is an integral part of our family (Mum - Heather, Dad - Colin, big brother - Nathan and twin sister - Grace). He teaches us so much about love; what it means to love and to be loved.

David and Grace were born at 24 weeks gestation in September 2018. David sustained a brain injury at birth, which has resulted in profound disabilities, which are life limiting and all consuming. He has quadriplegic cerebral palsy, bilateral hearing loss, cerebral visual impairment, severe dystonia, epilepsy, a complex gut and hip displacement. He is non verbal, non mobile and relies on bulky equipment to help with postural care and positioning as well as medical equipment to help keep him in the best health possible. We communicate with David by using Canaan Barrie on body signs.

At almost 5 years old, David still sleeps in our bedroom. We need to get to him quickly throughout the night when he needs help. He has an unsafe swallow and relies on a suction machine to keep his airways clear and minimise the risk of aspiration. When he coughs, struggles with reflux or vomits, we need to be quick to act. David doesn't have paid carers, and we are routinely up and down several times during the night to care for him and ensure he is safe.