We were initially told that we would need to create a bedroom downstairs for David but this simply would not fit his needs (or ours). He needs to be upstairs, where the rest of his family sleeps. We created bespoke plans to design an inclusive and accessible family home for David's future, allowing him space to grow (as well as space for growing equipment that he needs).
We hope to build a bedroom and ensuite bathroom (with a height adjustable bath) for David above our garage. In order to maximise the space for David upstairs, we are slightly extending directly underneath. We are converting our garage to create some more living space and also to fit a through-the-floor lift, giving David access to his bedroom.
Currently, David spends a lot of time in his suppine standing frame. It's too wide to move through the doorway, resulting in David often being confined to our kitchen space. As part of the adaptation plans, doors will be widened to allow David access to all areas of his home, which is so important to us as a family. We will create an accessible changing space from our downstairs toilet – what a difference from currently changing him on a sofa! He'll have the dignity and privacy that everyone deserves. We need to move his sister, Grace's, bedroom forward to extend the hallway, giving access to David's bedroom. We will also create a door from our bedroom directly into David's new bedroom for quick access, especially during the night. A concrete ramp will ensure wheelchair access to our front door.
As David's parents, we both work and juggle caring commitments. We have saved incredibly hard to allow us to make changes to our family home. Covid and Brexit have significantly impacted the expected costs. Initially we were told that the work could have been covered for £80,000. However, we have since been quoted £135,000. We had hoped to add any additional costs to our mortgage, but, with mortgage rates also increasing, this is no longer feasible. We now find ourselves relying on fundraising to help us bridge the deficit.
Plans were drawn up when David was 2 years old. He's now almost 5 and we are feeling the strain on our bodies from carrying him around the house, especially up and down stairs. Our planning permission expires in November 2023 and we are really feeling the pressure to begin the work before then.
Any additional funds raised will help with floor coverings, tiles for wetroom and internal cupboard doors, which have not been included in costings.
And we've been blown away once again by acts of love and kindness towards our amazing boy...
David's fundraising project with Sullivan's Heroes has just received a £5000 donation from Arnold Clark, courtesy of their Chief Executive and Managing Director, Eddie Hawthorne!
Thank you so much ❤26th June 2023 "A Disco for David" raised a phenomenal £4583 at the Torrance Golf Club, East Kilbride, on Friday 23rd June 2023. My colleagues pulled out all the stops and a great time was had by all. Special thanks to Laura, who was inspired to help and coordinated the event impressively. Team Mossy are simply outstanding! The raffle and auction were brilliant. Overall, a stupendous event! 22nd June 2023 Look who's home! 😍 A week in hospital. A week at Robin House (CHAS). Four weeks still to go with his plaster spica on. This brave boy has faced and overcome so much in this past fortnight. He's got this! We are looking forward to a 'Disco for David' tomorrow night - a fundraising event organised by my wonderful colleagues. We've received some phenomenally generous raffle and financial donations from local businesses, who have been touched by hearing about our boy and want to help. Special thank you to the following: Just Perfect ML3 BAR Optical Factor Red Burn Farm Hamish & Weir Barbers We are currently sitting at 88% of our total. Wow! Thank you so, so much ❤ 18th June 2023 A wee family snap to share of Team Goring! Although the reality is that there are way more than 5 team members in Team Goring. We are utterly flabbergasted and humbled by the love shown to us and the gifts towards helping adapt our home for David. You are all so special and we appreciate every single gift of love and kindness. Love truly does conquer all. We are at 78% of the total raised. It's really just phenomenal. Thank you for loving us ❤ 16th June 2023 I can't believe we have raised a massive FIFTY FIVE PERCENT of David's fundraising total! Wow! You are simply superb! Thank you! ⭐ 13th June 2023 Wowee! We're ONE THIRD of the way to our target! 😍 Thank you all so much. Please keep sharing with your friends, family and colleagues. David's doing well. Slow and steady. We're thankful for effective pain relief, which is keeping him comfortable and able to rest. 9th June 2023 Our David reminds us of David in the Bible. This little boy has been slaying giants yet again (and has added a few more battle wounds to his body in the process). Yesterday, he was in theatre for much longer than expected getting double hip surgery (including one full hip reconstruction). He's modelling his royal purple plaster spica beautifully. Pain relief is keeping him settled. It pains us to think of everything this brave boy endures. But he is truly remarkable and he deserves the very best. Our family and family, and friends of friends are simply amazing too! ⭐ You have donated and shared David's story. Please keep doing this. We have reached 25% of the value needed! Wow. Wow! WOW! ❤ 8th June 2023 We are completely blown away by the generosity of you. As I type this, 13% of funds have been raised. Wow! This morning, our brave boy is in theatre having a hip operation. It's so hard to leave him in the anaesthetist room and even harder to wait. But we know he is in good hands with the surgical team. And we are so thankful for our friends and church family who are upholding him in prayer. Please know how much we value your help for David. There have been some tears shed this morning. Emotions are high. But we are touched by the love shown to us as a family ❤
Sullivan’s Heroes is a charity offering support and financial assistance for families raising essential funds towards vital home adaptations for a disabled child.
Registered Charity Number 1163021.
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