In 2019 we were given the devastating news that Oli has a progressive life limiting neurological condition – Friedreich’s Ataxia. He is 14 years old.

Sadly Oli’s condition has progressed to the point where we now need major adaptations to our home. The cost of this is in excess of £100k. The Disabled Facilities Grant is currently only for £30k maximum which has been granted to us however this only covers a very small amount of the work needed.

We need a through floor lift, a loft conversion, wet room as well as a bathroom and bath, one that can be raised and lowered to help with Oliver’s muscles and can give him a place to relax.

We also need adaptations made to the kitchen to add areas where Oli can have somewhere to make meals in the future to give him more independent living. We also need a ramp built so he can get his wheel chair into the garden.

Thank you.