Ana-Lily has a wonderful personality and attitude towards life. In spite of all the things that she can't do, she has an amazing ability to brighten up every room she enters with her infectious smile and famous giggles!

Ana-Lily loves singing and music! She enjoys watching musical films, especially 'Annie'. It has to be the original movie from 1982!

She enjoys getting out and about. Favourite places are shopping centres with lots to see and hear or the park, if the outdoor conditions are just right! She tries her best to engage in lots of activities like arts and crafts, cookery or just some fun, messy play!

She attends a special school with lots of therapy input. Her focus at the moment is on making progress using her eye-gaze system. We are hoping that it will be the tool she will use in order to communicate all her needs more effectively. She keeps both mummy and daddy very busy when using it.

She has been through a lot of difficult times in her short life, particularly over this last year. There have been lots of changes for her, for example, going from being completely orally fed to having to use a gastrostomy tube for all of her feeding and medication. She has also lost some physical skills that she would have had previously. However, in spite of this, her character and personality shine through even more strongly. She is our joy and happiness!