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An Accessible Home for Zep

Zeppelin Petre-Wright
Brighton

Zeppy is a funny, cheeky, mischievous little boy with an infectious smile and a huge heart. He's  7 years old and is obsessed with Minecraft, Space and Star Wars. He also has Duchenne Muscular Dystrophy, a devastating and life-shortening muscle wasting disease which currently has no cure.


Duchenne effects all muscles in Zep's body slowly making them weaker. He already struggles to walk for more than 10 minutes and is unable to climb stairs without help. By his teens he will be robbed of his ability to walk entirely, to hug his friends and family and eventually, to breathe on his own. One day it will reach his heart.


Our goal is to make his life wonderful!


We are currently adapting our home so that when the time comes for Zep to be in his wheelchair full time, he can live as comfortably and independently as possible with the dignity every child deserves. As his condition progresses, Zep will rely entirely on mobility aids, hoists, breathing equipment and full time care.


We have secured a disabled facilities grant from the local authority to build a downstairs bedroom and wet-room for Zep however, this will only cover part of the costs and will take the place of our communal family living space and render the rest of our home inaccessible for Zeppelin's wheelchair.


As well as reconfiguring our home to include a downstairs bedroom and wetroom, installing ramps and widening doors, we also aim to build a small, rear extension to replace our living room and open up the house so that it is fully accessible for Zep and his wheels. The cost to do this is huge, and having spent the only savings we had on Zeppelin's wheelchair and a wheelchair accessible vehicle to get us from A-B, we now have a shortfall of £20,000 to cover the cost of the build.


Please support us to make our home a safe place for Zep, to have the life he deserves for as long as possible.


Thank you.


Zeppy is a funny, cheeky, mischievous little boy with an infectious smile and a huge heart. He's 7 years old and is obsessed with Minecraft, Space and Star Wars. He also has Duchenne Muscular Dystrophy, a devastating and life-shortening muscle wasting disease which currently has no cure.
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Fundraising target

£20,000
Project by
Emma Petre
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