Zeppy is a funny, cheeky, mischievous little boy with an infectious smile and a huge heart. He's 7 years old and is obsessed with Minecraft, Space and Star Wars. He also has Duchenne Muscular Dystrophy, a devastating and life-shortening muscle wasting disease which currently has no cure.
Duchenne effects all muscles in Zep's body slowly making them weaker. He already struggles to walk for more than 10 minutes and is unable to climb stairs without help. By his teens he will be robbed of his ability to walk entirely, to hug his friends and family and eventually, to breathe on his own. One day it will reach his heart.
Our goal is to make his life wonderful!
We are currently adapting our home so that when the time comes for Zep to be in his wheelchair full time, he can live as comfortably and independently as possible with the dignity every child deserves. As his condition progresses, Zep will rely entirely on mobility aids, hoists, breathing equipment and full time care.
Sullivan’s Heroes is a charity offering support and financial assistance for families raising essential funds towards vital home adaptations for a disabled child.
Registered Charity Number 1163021.
Copyright © 2024 Sullivan’s Heroes. All rights reserved. Registered Charity Number 1163021.
Emma Petre