Ciara is my 16 year old daughter who was diagnosed with Charcot Marie Tooth Type (CMT) 2a, when she was 4 years old. CMT is a muscle wasting condition and she is now unfortunately, wheelchair bound. Ciara and her brother, Sid, lost their dad to cancer in November 2019, just one day after his 50th birthday.
We had to move house in October 2021 as my family circumstances changed. One of my older twin boys moved out on his own and I couldn't afford to stay in the house we were in.
We need to have a rear extension done at the new house to give ciara a bedroom and level access wetroom. Her bed is currently in the living room and she has no privacy whatsoever.