Mim is a beautiful little girl who has a very rare ‘GRIN1’ gene mutation, which affects the ‘neuroplasticity’ of her brain, making it harder for her to learn and acquire new skills.

The diagnosis is a pretty good fit for Mim’s symptoms, explaining her poor vision and dystonic movements, although we’re very fortunate she doesn’t suffer from epilepsy.

The condition was only discovered in 2011, so we’re told that Mim is one of maybe 7 or 8 children in the world currently diagnosed with it – making her truly one in a billion.