Katie Powles' Projects

Katie Powles

Grayson is a 6 year old boy who with an incredibly rare large gene deletion which involves 4 genes. Due to this Grayson has multiple complex disabilities.

Grayson is blind, he has profound learning disabilities and is non verbal. He has very poor muscle tone, he is unable to sit unaided, stand or walk which means he is fully reliant on a wheelchair, specialist equipment and daily physiotherapy. He has a hormone deficiency which means he requires daily injections to regulate his growth hormone. Due to growth hormone we have seen Grayson have rapid growth spurts and he is now to big to safely lift and carry.